Example list of questions (de-identified) - for illustration purposes only
SITUATION
I was diagnosed with breast cancer in August and had surgery a month later, followed by radiation
I want to understand the following terms on the pathology report:
Moderately differentiated infiltrating carcinoma
surgical margins free of tumor – does that mean that there is none for 1/2 cm around edges?
I am currently on Arimidex.
CHOICES
Chemotherapy?
If I need chemotherapy, what are the options?
What does Dr. Smith recommend and why?
Neulasta along with chemotherapy?
Any further tests?
OBJECTIVES
For treatment
- Avoid side effects such as leukemia, heart issues, infections. I am concerned about dosage and getting large amounts all at once, as well as their long-term effects on my body.
- If I end up doing a brutal kind of chemotherapy, I want to get it on a Friday to recover so I can go back to work on Monday.
- Work occupies my mind, I want to continue working if I am to receive chemotherapy. I work with kids, I am concerned about my immune system getting weakened by chemotherapy.
For appointment
- I like being told the facts and details. I will analyze them and ask questions until I completely understand the answer.
- I want the rationale for needing chemotherapy before I decide to proceed.
- I like facts, numbers, charts.
PEOPLE
- Can I get Neulasta shots somewhere closer to home? Are there any local oncologists Dr. Smith would recommend?
- I have a friend who will drive me up here on Fridays if necessary. My daughter is supportive.
EVALUATION
Why do they recommend taking Arimidex for only 5 years?
Is there a way to receive chemotherapy gradually over a longer period of time? I would prefer receiving chemotherapy this way, if I do need it.
Are infections due to a “jolt to system” from chemotherapy? Is gradual delivery as effective?
If I do need chemotherapy:
- I would like to understand the benefits vs. risks of chemotherapy.
- I would also like to learn about recovery and side effects of chemotherapy.
DECISIONS
I will decide whether I need chemotherapy based on my discussion with Dr. Smith.
I will decide within the next 24/48 hours. I will take into account my daughter’s opinion.